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Million Dollar Bike Ride - Pitt Hopkins
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Recent donations (3 donations)
Name DescendingX Amount
Mrs. Gabriele Möller $40.00
Mrs. Jennifer Anderson Tvrdik $50.00
Mrs. Tracy Phillips
Recent donations
Top donors (3 donations)
Mrs. Jennifer Anderson Tvrdik $50.00
Mrs. Gabriele Möller $40.00
Mrs. Tracy Phillips
PTHS Donation Totals So Far -- $61,485!

The Pitt Hopkins Research Foundation is a non-profit organization committed to supporting research dedicated to finding a treatment, and hopefully an eventual cure of Pitt Hopkins and other similar disorders. Visit www.pitthopkins.org for more information.
What is Pitt Hopkins Syndrome?
Pitt Hopkins is a rare and severe neuro-developmental disorder caused by a mutation of the TCF4 gene on the 18th chromosome. It is characterized by profound developmental delays, problems with motor coordination (ataxia) and balance, breathing abnormalities, seizures and severe intellectual disability. Most individuals with Pitt Hopkins do not develop functional speech. Pitt Hopkins affects all races and both genders equally.

Since the gene that causes Pitt Hopkins was only found in 2007, currently there are less than 300 children in the world diagnosed with this syndrome, however we believe there are many more. Because loss of TCF4 prevents neurons from functioning currently, our scientist believe that studying Pitt Hopkins will also give us important insight into other neurological disorders with no known etiology like Alzheimers, Autism and Epilepsy.

For more information on Pitt Hopkins please visit www.pitthopkins.org
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Register to Ride for Pitt Hopkins:
RIDE DETAILS:
Saturday, May 3rd
9:00am start
Start/Finish Line - Highline Park, 3160 Chestnut Street, Philadelphia, PA
Three route options - 11, 34, or 73 miles -- see routes here http://www.milliondollarbikeride.org/ride-routes/
Jersey, refreshments, and entertainment included!

Team registration is open; contact wilsonjm@mail.med.upenn.edu

Individual cyclist registration is open: http://www.pennmedicine.org/milliondollarbikeride

Volunteer registration is open: www.pennmedicine.org/milliondollarbikeridevolunteer
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How to create your own giving page:
Fundraising cyclists are encouraged to create a giving page, where people can see your story of why you have chosen to ride and donate to your cause. See website below to get started.

Guidelines to help set up the giving page:
http://www.milliondollarbikeride.org/fundraising-setup/
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WE HAVE SOME AMAZING PEOPLE RIDING FOR PITT HOPKINS, CHECK OUT THEIR PAGES!!

ELIZABETH JENNINGS has Pitt Hopkins Syndrome and will celebrate her 16th birthday in Philadelphia, riding for herself and all of her Pitt Hopkins friends! She is an inspiring young lady!! WE LOVE LIZ!! Check out her story and donate for TEAM LIZ here: http://givingpages.upenn.edu/LizSweet16ForPTHS

GWEN DAVIDOW is riding for her sweet nephew, CALVIN LAPIDUS! Check out Gwen's page and donate for CALVIN here: http://givingpages.upenn.edu/ForCal

THE MIRIGLIANI FAMILY and TEAM ANTHONY are riding for hope! Check out Anthony's story and donate for him here: http://givingpages.upenn.edu/Teamanthony

TEAM EMMA and family are fundraising for the Pitt Hopkins Pedalers!! Read Emma's story and donate for her here: http://givingpages.upenn.edu/PHRFTeamEmma

DAVE FITZGERALD is riding for his amazing son, CONNOR! Check out Connor's story and donate for him here: http://givingpages.upenn.edu/curekidslikeConnor

TEAM RYLIE and family are riding for Pitt Hopkins! Check out Rylie's story and donate for her here: http://givingpages.upenn.edu/TeamRylie

TEAM LILLY & JULIA! Their family friend, Jo, is riding in honor of the girls! Check out their story and donate here: http://givingpages.upenn.edu/AnswersotherthanASD

SUE ROUTLEDGE is riding for her inspiring son CHRISTOPHER! She is traveling all the way from the UK to ride, check out their story and donate here: http://givingpages.upenn.edu/teamChristopherUK

HENRY LENZEN and family are fundraising for Pitt Hopkins in Colorado! Check out their fundraising event and donate here: http://givingpages.upenn.edu/kidsbikeforhenry

TEAM ADALYN and family are fundraising for the Pitt Hopkins Pedalers!! Read her story and donate on her behalf here: http://givingpages.upenn.edu/teamadalyn

TEAM BRENDAN and family are fundraising for Pitt Hopkins! Donate on Brendan's behalf and read his story at his giving page: http://givingpages.upenn.edu/bikingforbrendan

LISA PRESSMAN is an amazing friend of the Lapidus family who has generously signed up to ride and fundraise in honor of Calvin! Check out her giving page and donate here: http://givingpages.upenn.edu/LovingFamily

TEAM STACY and family are fundraising for Pitt Hopkins! Donate on Stacy's behalf at her giving page here: http://givingpages.upenn.edu/teamStacy
Why We Need You!
The Penn Medicine Center for Orphan Disease Research and Therapy (CODRT) is sponsoring this race to raise money for research in rare diseases such as Pitt Hopkins, and they will MATCH EVERY DOLLAR DONATED!! (up to $50,000) Please consider donating to our cause and being a part of transformative research. 100% of your donation will go towards research!
  • Less than 300 diagnosed world wide
  • Rare diseases impact more people than aids and cancer combined
  • Non-profit Organization
  • Ran completely by volunteers
  • All riders will receive a jersey
  • 100% of your donation is tax-deductible
  • Give some amazing children hope
Donation messages
Our donation is in honor of Henry Lenzen and his Pitt Hopkin's sisters, Rylie and Emma. May you be brave, strong, and inspire us all! --Mrs. Jennifer Anderson Tvrdik
Best of luck to Jack and Rylie for a great RACE!!! --Mrs. Tracy Phillips
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delrossi@upenn.edu | Anne Marie Del Rossi, Director, Data Services | 215.898.3062
2929 Walnut Street, Suite 300 Philadelphia, PA 19104 | Superuser